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    Last Updated: 01/09/2026

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    MediFind found 31 doctor with experience in Clouston Syndrome near San Francisco, CA. Of these, 23 are Experienced, 4 are Advanced, 3 are Distinguished and 1 are Elite.

    Location
    LocationClose
    31 providers found
      Elite in Clouston Syndrome
      Pediatrics | Dermatology
      Elite in Clouston Syndrome
      Pediatrics | Dermatology
      1701 Divisadero St, 
      San Francisco, CA 
       (1.3 miles away)
      Languages Spoken:
      English

      Ilona Frieden is a Pediatrics specialist and a Dermatologist in San Francisco, California. Dr. Frieden is rated as an Elite provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

      Distinguished in Clouston Syndrome
      Distinguished in Clouston Syndrome

      University Of California San Francisco

      2330 Post St, 
      San Francisco, CA 
       (1.3 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English

      Mark Mamlouk is a Radiologist in San Francisco, California. Dr. Mamlouk has been practicing medicine for over 18 years and is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are PHACE Syndrome, Cerebrospinal Fluid Leak, Ectodermal Dysplasias, Clouston Syndrome, and Tissue Biopsy.

      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics
      Distinguished in Clouston Syndrome
      Medical Genetics | Pediatrics
      513 Parnassus Ave, Room S747, Box 0442, 
      San Francisco, CA 
       (2.3 miles away)
      Languages Spoken:
      English

      Ophir Klein is a Medical Genetics specialist and a Pediatrics provider in San Francisco, California. Dr. Klein is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Costello Syndrome, RASopathies, Ectodermal Dysplasias, and Clouston Syndrome.

      Learn about our expert tiers
      Experienced in Clouston Syndrome
      Pediatric Cardiology
      Experienced in Clouston Syndrome
      Pediatric Cardiology

      University Of California San Francisco Children's Hospital

      550 16th St, 
      San Francisco,, CA 
       (1.7 miles away)
      Languages Spoken:
      English

      Aneela Reddy is a Pediatric Cardiologist in San Francisco,, California. Dr. Reddy is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Coarctation of the Aorta, Anomalous Left Coronary Artery from the Pulmonary Artery, Clouston Syndrome, and Ectodermal Dysplasias.

      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics
      Advanced in Clouston Syndrome
      Medical Genetics | Pediatrics

      University Of California San Francisco

      2330 Post St, 
      San Francisco, CA 
       (1.3 miles away)
      Languages Spoken:
      English

      Joseph Shieh is a Medical Genetics specialist and a Pediatrics provider in San Francisco, California. Dr. Shieh is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Myhre Syndrome, and Ectodermal Dysplasias.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome
      1701 Divisadero St, 
      San Francisco, CA 
       (1.3 miles away)
      Languages Spoken:
      English

      Matthias Schmuth is a Dermatologist in San Francisco, California. Dr. Schmuth is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Netherton Syndrome, Ichthyosis Vulgaris, Nonbullous Congenital Ichthyosiform Erythroderma, and X-Linked Ichthyosis.

      Advanced in Clouston Syndrome
      Dermatology | Pediatrics
      Advanced in Clouston Syndrome
      Dermatology | Pediatrics

      University Of California San Francisco

      1701 Divisadero St, 
      San Francisco, CA 
       (1.3 miles away)
      Languages Spoken:
      English

      Erin Mathes is a Dermatologist and a Pediatrics provider in San Francisco, California. Dr. Mathes is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are PHACE Syndrome, Lamellar Ichthyosis, Hemangioma, Aplasia Cutis Congenita, and Tissue Biopsy.

      Advanced in Clouston Syndrome
      Advanced in Clouston Syndrome
      505 Parnassus Ave, 
      San Francisco, CA 
       (2.3 miles away)
      Languages Spoken:
      English

      Glenn Rosenbluth is a Pediatrics provider in San Francisco, California. Dr. Rosenbluth is rated as an Advanced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Naegeli-Franceschetti-Jadassohn Syndrome, AEC Syndrome, Zlotogora-Ogur Syndrome, Clouston Syndrome, and Osteotomy.

      Distinguished in Clouston Syndrome
      Distinguished in Clouston Syndrome

      Ucsf Medical Group Business Services

      3100 San Pablo Ave, 
      Berkeley, CA 
       (8.9 miles away)
      Languages Spoken:
      English

      Christopher Hess is a Radiologist in Berkeley, California. Dr. Hess is rated as a Distinguished provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are PHACE Syndrome, Clouston Syndrome, Ectodermal Dysplasias, Deep Brain Stimulation, and Vertebroplasty.

      Experienced in Clouston Syndrome
      Neonatology | Pediatrics
      Experienced in Clouston Syndrome
      Neonatology | Pediatrics
      2200 Ofarrell St, 
      San Francisco, CA 
       (1.3 miles away)
      Languages Spoken:
      English

      Carlos Botas is a Neonatologist and a Pediatrics provider in San Francisco, California. Dr. Botas is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are EEC Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, Zlotogora-Ogur Syndrome, AEC Syndrome, and Gastrostomy.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      University Of California San Francisco

      2330 Post St, 
      San Francisco, CA 
       (1.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Lowell Nicholson is a Dermatologist in San Francisco, California. Dr. Nicholson is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Pachyonychia Congenita, Dyskeratosis Congenita, Acrokeratoelastoidosis of Costa, and Palmoplantar Keratoderma.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      University Of California San Francisco

      2330 Post St, 
      San Francisco, CA 
       (1.3 miles away)
      Languages Spoken:
      English

      Rachel Waldemer-Streyer is a Dermatologist in San Francisco, California. Dr. Waldemer-Streyer is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Steatocystoma Multiplex, Pachyonychia Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      University Of California San Francisco

      1701 Divisadero St, 
      San Francisco, CA 
       (1.3 miles away)
      Languages Spoken:
      English

      Kelly Cordoro is a Dermatologist in San Francisco, California. Dr. Cordoro is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Psoriasis, Localized Scleroderma, Guttate Psoriasis, and Netherton Syndrome.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      1701 Divisadero St, 
      San Francisco, CA 
       (1.3 miles away)
      Languages Spoken:
      English

      Martin Steinhoff is a Dermatologist in San Francisco, California. Dr. Steinhoff is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Rosacea, Atopic Dermatitis, Pustules, and Squamous Cell Skin Carcinoma.

      Experienced in Clouston Syndrome
      Dermatology
      Experienced in Clouston Syndrome
      Dermatology

      Ucsf Medical Group Business Services

      185 Berry St, 
      San Francisco, CA 
       (1.5 miles away)
      Languages Spoken:
      English

      Joanna Tu is a Dermatologist in San Francisco, California. Dr. Tu is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Linear Hamartoma Syndrome, Familial Multiple Nevi Flammei, Stork Bite, and Vascular Birthmark.

      Experienced in Clouston Syndrome
      Allergy and Immunology
      Experienced in Clouston Syndrome
      Allergy and Immunology

      Allergy Center

      1825 4th St # 6, 
      San Francisco, CA 
       (1.7 miles away)
      Languages Spoken:
      English

      Morna Dorsey is an Allergy and Immunologist in San Francisco, California. Dr. Dorsey is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Severe Combined Immunodeficiency (SCID), Primary Immunodeficiency (PID), Infantile Neutropenia, and Secondary Immunodeficiency (SID).

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      515 Spruce St, 
      San Francisco, CA 
       (2.0 miles away)
      Languages Spoken:
      English

      Pui-yan Kwok is a Dermatologist in San Francisco, California. Dr. Kwok is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Retinopathy Pigmentary Mental Retardation, Plaque Psoriasis, Wolf-Hirschhorn Syndrome, and Hirsutism in Women.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome
      400 Parnassus Ave # A-887, 
      San Francisco, CA 
       (2.2 miles away)
      Languages Spoken:
      English

      Michael Aminoff is a Neurologist in San Francisco, California. Dr. Aminoff is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Movement Disorders, Parkinson's Disease, Brown-Sequard Syndrome, and Essential Tremor.

      Experienced in Clouston Syndrome
      Pediatric Neurology | Neurology
      Experienced in Clouston Syndrome
      Pediatric Neurology | Neurology

      University Of California San Francisco

      400 Parnassus Ave, Mcb300, 
      San Francisco, CA 
       (2.2 miles away)
      Languages Spoken:
      English

      Alyssa Reddy is a Pediatric Neurologist and a Neurologist in San Francisco, California. Dr. Reddy is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Gliomatosis Cerebri, and Glioma.

      Experienced in Clouston Syndrome
      Experienced in Clouston Syndrome

      University Of California San Francisco

      400 Parnassus Ave, Mcb300, 
      San Francisco, CA 
       (2.2 miles away)
      Languages Spoken:
      English

      Anubhav Mathur is a Dermatologist in San Francisco, California. Dr. Mathur is rated as an Experienced provider by MediFind in the treatment of Clouston Syndrome. His top areas of expertise are Incontinentia Pigmenti, Familial Multiple Nevi Flammei, Stork Bite, and Vascular Birthmark.

      Showing 1-20 of 31

      Last Updated: 01/09/2026

      What is the definition of Clouston Syndrome?

      Clouston syndrome is a form of ectodermal dysplasia, a group of about 150 conditions characterized by abnormal development of some or all of the ectodermal structures, which include the skin, hair, nails, teeth, and sweat glands. Specifically, Clouston syndrome is characterized by abnormalities of the hair, nails, and skin, with the teeth and sweat glands being unaffected.

      When should I see a Clouston Syndrome doctor near San Francisco, CA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Clouston Syndrome doctor near San Francisco, CA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Clouston Syndrome doctors near San Francisco, CA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Clouston Syndrome doctors near San Francisco, CA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Clouston Syndrome doctor near San Francisco, CA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Clouston Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Clouston Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Clouston Syndrome doctor near San Francisco, CA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Clouston Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Clouston Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Clouston Syndrome doctors near San Francisco, CA?

      Look for the filter feature on the left side of the Clouston Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Clouston Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Clouston Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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